Submitted on 27-04-2008

Nature of Enquiry Hello my name is Logan George Edson, I am 3 years old. I have a rare muscular disorder called Ulrich Congenital Muscular Dystrophy (UCMD). My muscles are weak and the doctor’s have said I will never be able to walk independently. I have to have a lot of physiotherapy to keep my muscles working, I also have respiratory problems so as you can imagine I spend a lot of time at different hospitals, I have regular chest infections and have had pneumonia 3 times, mummy and daddy didn’t think I was going to make it and I don’t think the doctors did either. During the day I like to go to nursery, I have a special chair so I can sit at the table and play alongside my friends. Until recently my friend Jo supported me whilst I moved from one activity to the other but now I have my very own electric wheelchair. I can move around the room on my own I have not managed to run anybody over…yet!! Friends and family say I am a happy but cheeky little boy with a wicked sense of humour, I have the face of an angel but I’m always full of mischief. I don’t know what the future holds for me but I know that mummy and daddy and all my family and friends will do anything to make sure that I have everything I need. Daddy is busy organizing a ‘fun day’ at the Costello Stadium on the 7th of June 2008. There is going to be lots of fair rides with roundabouts and swings, face painting, music and dancing, daddy said there is going to be a raffle and he said that if I ask you nicely you may be able to donate something…. I did say I was cheeky!! If you’re not busy on the 7th of June I would love to see you, you will know which one is me I’ve got the face of an angel and a cheeky smile. If you need to talk to Mummy or Daddy, Mummy’s name is Carlie and Daddy’s name is Chris. We live at 23 Runcorn Garth, Anlaby Park Road South, Hull HU4 7LJ Our phone number is 01482 642662 or you can send them an Email: edson05@live.co.uk Thank you love Logan xxx
Contact Via:Email